I’ve been following Maya Thompson’s blog at RockstarRonan.com since a friend recommended I listen to Taylor Swift’s song “Ronan” after the Stand Up to Cancer fundraiser in September. “Ronan” was inspired by Maya and her son, Ronan, who died at four years old to neuroblastoma. Maya has started a White House petition to make the White House gold to raise awareness for childhood cancers in September, similar to what the White House does in October for Breast Cancer Awareness Month. They need more than 15,000 signatures by February 6 for it to be considered. Please read and consider signing this petition.

A few startling facts I’ve learned from Maya are:
Childhood cancer is the number one disease killer in children.
Neuroblastoma is the most common cancer in infancy.
Neuroblastoma is the most common extra cranial solid tumor cancer in children.
Every 16 hours a child with neuroblastoma dies.
There is no known cure for neuroblastoma.
Nearly 70% of those children first diagnosed, have disease that has already metastasized or spread to other parts of the body. When disease has spread at diagnosis and a child is over the age of 2 there is less than a 30% chance of survival.
Childhood cancer is the leading cause of death by disease in the US and it kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined.
There are 15 children diagnosed with cancer for every one child diagnosed with pediatric AIDS. Yet, the U.S. invests approximately $595,000 for research per victim of pediatric AIDS and only $20,000 for each victim of childhood cancer.
The National Cancer Institute’s (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3%.
5%-7% of all childhood malignancies
about 1 in 6000 children will be diagnosed with neuroblastoma by the age of five
The average age at diagnosis is two
About 25% of newly diagnosed neuroblastomas are found in children under the age of one

ROCKSTAR RONAN

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O.k… As much as I LOVE Star Wars, the fact that this petition got over 25,000 signatures, enough to make it to The White House, is a little disturbing to me.

http://www.huffingtonpost.com/2013/01/11/death-star-petition_n_2460265.html

PLEASE PLEASE PLEASE take one minute and sign our petition below. These kids deserve the recognition and the awareness as they are fighting for their lives. Please do it for the kids who are no longer here, who are still fighting, and even the one’s who will be diagnosed in the future. This problem is NOT going away just because it is being ignored. I will be heartbroken if this does not make it to The White House.

https://petitions.whitehouse.gov/petition/light-white-house-gold-month-september-honor-pediatric-cancer-fighters-and-bring-light-cause/syV6M6wX?utm_source=wh.gov&utm_medium=shorturl&utm_campaign=shorturl

Thank you all who have signed and shared. Please continue to share with this everyone and anyone.

xoxo

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